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		<title><![CDATA[May Thurner Syndrome Forums - All Forums]]></title>
		<link>http://www.maythurnersyndrome.com/</link>
		<description><![CDATA[May Thurner Syndrome Forums - http://www.maythurnersyndrome.com]]></description>
		<pubDate>Mon, 06 Feb 2012 18:54:56 -0600</pubDate>
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			<title><![CDATA[My Story]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=122</link>
			<pubDate>Mon, 09 May 2011 11:23:03 -0500</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=122</guid>
			<description><![CDATA[Hello there, hopefully my story can help others out<img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" /><br />
I am a 31 year old mother of three children, ages, 12, 9 and 4.  Since the birth of my 12 year old daughter I have constant pain in my right leg...yepper I said that correctly...right...which still stumps the doctors. Even after sleeping I feel like I have been up running all night.  They said it was in my head, blah, blah, blah.  Well then my 9 year old son came along, about 6 months into my pregnancy I had to wear a cradle to help relieve the pressure on my legs and lower half, and again they blamed this all on pregnancy.  After the birth of my 4 year old son, I said enough was enough, I had a rough pregnancy with lots of pain in my lower half, small veins popping up in my buttocks all they way down my thigh, and the discoloration in my leg and feet was frequent.  After his birth the pain continued and the doctor said I had poor circulation in my legs?  And left it at that, well in June of 2008, the pain in my right leg was unbearable.  They finally referred me to a vascular surgeon who did all the ultrasounds, MRI's and tests and diagnosed me with MTS...and pelvic congestion syndrome.  I was very close to throwing a major clot, as my Left Common Illiac Vein was nearly closed.  I was moving to Texas in less than a month, so it was decided to have a specialist look at me as soon as I got there.<br />
Seen a new doctor in September of 2008, who confirmed all the same things, after repeat tests, and I was scheduled for a venogram in November 2008 with the Interventional Radiologist.  Three hours later, I had 2 stents piggy backed to keep the vein open, and 6 coils for the pelvic congestion syndrome.  This procedure was very painful and recovery took over a week, as it was bilateral, but the pain had somewhat diminished for about 6 months.  They went back in September 2008 with a right venogram but everything looks good.  Here we are again...I just moved to NC and am back to seeing doctors to figure out what is going on.  The pain is still there, and they can't seem to decide if it is MTS or the PCS going on?  <br />
I am open for any advice on treatment or things that work for them.  I am a non smoking, and non drinking person who is thin, so I don't meet the "normal" stereotypes for these conditions.  Feels good reading this to know I am not alone, as most people think I am crazy and even Doctors have no idea??  <br />
Again any advice or input please I am open to it....and my advice to anyone....always follow your gut instinct, if you know something is not right with you....push and push till you get the right help!!<br />
Gina]]></description>
			<content:encoded><![CDATA[Hello there, hopefully my story can help others out<img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" /><br />
I am a 31 year old mother of three children, ages, 12, 9 and 4.  Since the birth of my 12 year old daughter I have constant pain in my right leg...yepper I said that correctly...right...which still stumps the doctors. Even after sleeping I feel like I have been up running all night.  They said it was in my head, blah, blah, blah.  Well then my 9 year old son came along, about 6 months into my pregnancy I had to wear a cradle to help relieve the pressure on my legs and lower half, and again they blamed this all on pregnancy.  After the birth of my 4 year old son, I said enough was enough, I had a rough pregnancy with lots of pain in my lower half, small veins popping up in my buttocks all they way down my thigh, and the discoloration in my leg and feet was frequent.  After his birth the pain continued and the doctor said I had poor circulation in my legs?  And left it at that, well in June of 2008, the pain in my right leg was unbearable.  They finally referred me to a vascular surgeon who did all the ultrasounds, MRI's and tests and diagnosed me with MTS...and pelvic congestion syndrome.  I was very close to throwing a major clot, as my Left Common Illiac Vein was nearly closed.  I was moving to Texas in less than a month, so it was decided to have a specialist look at me as soon as I got there.<br />
Seen a new doctor in September of 2008, who confirmed all the same things, after repeat tests, and I was scheduled for a venogram in November 2008 with the Interventional Radiologist.  Three hours later, I had 2 stents piggy backed to keep the vein open, and 6 coils for the pelvic congestion syndrome.  This procedure was very painful and recovery took over a week, as it was bilateral, but the pain had somewhat diminished for about 6 months.  They went back in September 2008 with a right venogram but everything looks good.  Here we are again...I just moved to NC and am back to seeing doctors to figure out what is going on.  The pain is still there, and they can't seem to decide if it is MTS or the PCS going on?  <br />
I am open for any advice on treatment or things that work for them.  I am a non smoking, and non drinking person who is thin, so I don't meet the "normal" stereotypes for these conditions.  Feels good reading this to know I am not alone, as most people think I am crazy and even Doctors have no idea??  <br />
Again any advice or input please I am open to it....and my advice to anyone....always follow your gut instinct, if you know something is not right with you....push and push till you get the right help!!<br />
Gina]]></content:encoded>
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			<title><![CDATA[Hello:)]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=121</link>
			<pubDate>Mon, 09 May 2011 11:04:07 -0500</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=121</guid>
			<description><![CDATA[Hi there, my name is Gina, I am 31 years old and was diagnosed with MTS in August 2008.  I am a strange case that has been a mystery for 12 years now.  I had 2 stents placed in November 2008, and have ongoing pain. I will write up a post with my story, as I have never had a DVT...and symptoms were rare.  Thanks<img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" /><img src="http://www.maythurnersyndrome.com/images/smilies/heart.gif" style="vertical-align: middle;" border="0" alt="Heart" title="Heart" />]]></description>
			<content:encoded><![CDATA[Hi there, my name is Gina, I am 31 years old and was diagnosed with MTS in August 2008.  I am a strange case that has been a mystery for 12 years now.  I had 2 stents placed in November 2008, and have ongoing pain. I will write up a post with my story, as I have never had a DVT...and symptoms were rare.  Thanks<img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" /><img src="http://www.maythurnersyndrome.com/images/smilies/heart.gif" style="vertical-align: middle;" border="0" alt="Heart" title="Heart" />]]></content:encoded>
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			<title><![CDATA[Hi there]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=120</link>
			<pubDate>Mon, 02 May 2011 23:22:28 -0500</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=120</guid>
			<description><![CDATA[Hello, my name is Melissa. I am a 31 year old student who was diagnosed with MTS Dec. 1, 2010.]]></description>
			<content:encoded><![CDATA[Hello, my name is Melissa. I am a 31 year old student who was diagnosed with MTS Dec. 1, 2010.]]></content:encoded>
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			<title><![CDATA[Chelce's Story]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=119</link>
			<pubDate>Fri, 25 Mar 2011 12:45:04 -0500</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=119</guid>
			<description><![CDATA[Hello all, I was diagnosed last Aug/Sept. and had two stents placed Sept. 1st. I've had problems with my legs for the last 6 years but am opposite from most others. I have never experienced swelling nor have I had any clots. Apparently with those two things not present it wasn't easy to diagnose. I do experience pain in both legs equally constantly. With enough pushing of my doctors I finally got them to send me to a vascular surgeon since I have a history of dvt in my family I thought it may be something vascular. Immediately he said may be a long shot but I'd like to check you for May Thurners within a month I was having stents placed. Unfortunately since that time my pain has worsened still no swelling and the discoloration of my feet has gotten tremendously worse. I had an ultra sound done about a month ago and stents are still in place and look great but I have a diseased vein in my left leg and go in on Apr. 1st for a endovenous ablation. Hopefully fingers crossed that will assist with the pain I've been experiencing I'm willing to try anything at this point. I am on daily aspirin but no thinners since I've never had any issues with clotting. I feel I have one of the best doctors there are out there since for the first time I feel someone actually believes me. He continues to push to figure out why I'm still in so much pain and that makes him awesome in my book <img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" /> Thanks for accepting me here it's nice to be surrounded by people who may understand a bit of what I'm going through rather than explaining it over and over to people who look at me like I'm nuts or just a big baby!!! <img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" />]]></description>
			<content:encoded><![CDATA[Hello all, I was diagnosed last Aug/Sept. and had two stents placed Sept. 1st. I've had problems with my legs for the last 6 years but am opposite from most others. I have never experienced swelling nor have I had any clots. Apparently with those two things not present it wasn't easy to diagnose. I do experience pain in both legs equally constantly. With enough pushing of my doctors I finally got them to send me to a vascular surgeon since I have a history of dvt in my family I thought it may be something vascular. Immediately he said may be a long shot but I'd like to check you for May Thurners within a month I was having stents placed. Unfortunately since that time my pain has worsened still no swelling and the discoloration of my feet has gotten tremendously worse. I had an ultra sound done about a month ago and stents are still in place and look great but I have a diseased vein in my left leg and go in on Apr. 1st for a endovenous ablation. Hopefully fingers crossed that will assist with the pain I've been experiencing I'm willing to try anything at this point. I am on daily aspirin but no thinners since I've never had any issues with clotting. I feel I have one of the best doctors there are out there since for the first time I feel someone actually believes me. He continues to push to figure out why I'm still in so much pain and that makes him awesome in my book <img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" /> Thanks for accepting me here it's nice to be surrounded by people who may understand a bit of what I'm going through rather than explaining it over and over to people who look at me like I'm nuts or just a big baby!!! <img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" />]]></content:encoded>
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			<title><![CDATA[Chelce]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=118</link>
			<pubDate>Fri, 25 Mar 2011 12:38:00 -0500</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=118</guid>
			<description><![CDATA[Hello all, the name is Chelce <img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" /> I just turned 30 this month at times feel alot older!! I live right outside of Charleston, South Carolina where I've spent 99% of my life and wouldn't live anywhere else. I was diagnosed with May Thurner a little over 7 months ago now and it's been a roller coaster since <img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" />]]></description>
			<content:encoded><![CDATA[Hello all, the name is Chelce <img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" /> I just turned 30 this month at times feel alot older!! I live right outside of Charleston, South Carolina where I've spent 99% of my life and wouldn't live anywhere else. I was diagnosed with May Thurner a little over 7 months ago now and it's been a roller coaster since <img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" />]]></content:encoded>
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			<title><![CDATA[Coumadin side-effects]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=117</link>
			<pubDate>Sun, 21 Nov 2010 16:42:03 -0600</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=117</guid>
			<description><![CDATA[My first DVT (left leg, groin to ankle) was 6/2003: hospitalized one week; Hep, TPA, etc..Angio,common illiac stent placed, sent home on Lovinox shots...changed to theraputic coumodin w/INR betw. 2.5 &amp; 3, 6/2004 decreased INR to Maint. betw. 1.5 and 2. <br />
Feeling EXHAUSTED iniciated a desire to get off Coumadin.<br />
9/2008 weaned off Coumadin.  Felt like my old self...energy level back to normal.<br />
About 4 months later...5 &amp; 1/2 years after my first DVT and stent placment I reclotted at stent sight on 1/9/2009.  Followed by same hospital protocaol and back on Coumodin for life.  10 mg daily/5 days &amp; 15 mg daily/2 days. INR maint. betw. 2.5 &amp; 3.<br />
There are days I am completely EXHAUSTED.  Prior to first DVT and Coumodin I excercised almost ever day and was VERY active.  Now there are days I could drop by mid-afternoon.  I have had some weight gain (prob. due to lack of excercise).  I get cold easily...and my nose is always runny.<br />
does anyone else experience any of these side-effects???<br />
<img src="http://www.maythurnersyndrome.com/images/smilies/huh.gif" style="vertical-align: middle;" border="0" alt="Huh" title="Huh" />]]></description>
			<content:encoded><![CDATA[My first DVT (left leg, groin to ankle) was 6/2003: hospitalized one week; Hep, TPA, etc..Angio,common illiac stent placed, sent home on Lovinox shots...changed to theraputic coumodin w/INR betw. 2.5 &amp; 3, 6/2004 decreased INR to Maint. betw. 1.5 and 2. <br />
Feeling EXHAUSTED iniciated a desire to get off Coumadin.<br />
9/2008 weaned off Coumadin.  Felt like my old self...energy level back to normal.<br />
About 4 months later...5 &amp; 1/2 years after my first DVT and stent placment I reclotted at stent sight on 1/9/2009.  Followed by same hospital protocaol and back on Coumodin for life.  10 mg daily/5 days &amp; 15 mg daily/2 days. INR maint. betw. 2.5 &amp; 3.<br />
There are days I am completely EXHAUSTED.  Prior to first DVT and Coumodin I excercised almost ever day and was VERY active.  Now there are days I could drop by mid-afternoon.  I have had some weight gain (prob. due to lack of excercise).  I get cold easily...and my nose is always runny.<br />
does anyone else experience any of these side-effects???<br />
<img src="http://www.maythurnersyndrome.com/images/smilies/huh.gif" style="vertical-align: middle;" border="0" alt="Huh" title="Huh" />]]></content:encoded>
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			<title><![CDATA[Megans Story]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=116</link>
			<pubDate>Fri, 19 Nov 2010 19:21:56 -0600</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=116</guid>
			<description><![CDATA[[/color&#93;[/font&#93;[font=Verdana&#93; [color=#FF1493&#93; I was diagnosed with MTS in Dec 2009. I am 25 now. At the time i had just started my job as a pediatric RN and just had a beautiful baby girl in August 2009. Everything was going great until one morning I woke up and my left leg felt like I had worked out super hard the day before. I hadnt exercised the day before but did drink a little bit. I attributed it to possibly hurting my back at work from lifting patients and went on my day. I was on night shift at work and the pain was pretty severe. I also noticed my left leg looked a little swollen and even asked a co-worker if she thought my leg looked bigger. After enduring a 13 hour shift I got home and changed and noticed that my left leg was huge and purple. My husband immediately took me to the ER and they diagnosed me with a blood clot. They had only done an ultrasound of the leg and were going to send me home until the doctor came in and pushed on my abdomen and it was super painful. After an abdominal CT they found that I had a rather large clot extending to my inferior vena cava. I had a tulip filter placed in the inferior vena cava and was sent to the ICU for a heparin drip and TPA. I went through five days of angioplasty and had a jugular cvc placed. After a week in the hospital I convinced my doctor to send me home on lovenox (shots) until my coumadin levels were up. I had my filter removed in jan 2010 and was able to come off coumadin in may 2010. I havent seen any other problems since and hopefully dont. I have a stent in my leg as well. I am now pregnant again so that poses new challenges and fears because I no longer see anyone for my MTS and my OB doesnt really know about it. I am definetly open for any advice or suggestions!!! Thanks!!!<img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" />]]></description>
			<content:encoded><![CDATA[[/color][/font][font=Verdana] [color=#FF1493] I was diagnosed with MTS in Dec 2009. I am 25 now. At the time i had just started my job as a pediatric RN and just had a beautiful baby girl in August 2009. Everything was going great until one morning I woke up and my left leg felt like I had worked out super hard the day before. I hadnt exercised the day before but did drink a little bit. I attributed it to possibly hurting my back at work from lifting patients and went on my day. I was on night shift at work and the pain was pretty severe. I also noticed my left leg looked a little swollen and even asked a co-worker if she thought my leg looked bigger. After enduring a 13 hour shift I got home and changed and noticed that my left leg was huge and purple. My husband immediately took me to the ER and they diagnosed me with a blood clot. They had only done an ultrasound of the leg and were going to send me home until the doctor came in and pushed on my abdomen and it was super painful. After an abdominal CT they found that I had a rather large clot extending to my inferior vena cava. I had a tulip filter placed in the inferior vena cava and was sent to the ICU for a heparin drip and TPA. I went through five days of angioplasty and had a jugular cvc placed. After a week in the hospital I convinced my doctor to send me home on lovenox (shots) until my coumadin levels were up. I had my filter removed in jan 2010 and was able to come off coumadin in may 2010. I havent seen any other problems since and hopefully dont. I have a stent in my leg as well. I am now pregnant again so that poses new challenges and fears because I no longer see anyone for my MTS and my OB doesnt really know about it. I am definetly open for any advice or suggestions!!! Thanks!!!<img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" />]]></content:encoded>
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			<title><![CDATA[nerve damage]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=115</link>
			<pubDate>Sat, 11 Sep 2010 00:25:05 -0500</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=115</guid>
			<description><![CDATA[Has anyone had any kind of nerve damage as a result of having the blood clot or may-thurner? I had a blood clot in sept of '09 and then found out i had may-thurner. My iliac vein was flat, blah blah, to make a long story short here, I got a stent put in, in the beginning of august. I was told that it might work and it might not work in regards to relieving my pain which is all over my left leg and foot. They put the stent in, it didn't work pain wise. My vein is now open and the blood flow is normal and I am not at risk for clotting but I still have pain so after seeing a few specialists, I was informed that I have nerve damage. I am going in for testing in a week or so to see which nerves are affected but from what I understand there is no cure really for nerve damage if its been over 6 months. Things like acupuncture and yoga might help it but its always going to be this way if not get worse which I have noticed in the past 6 months, it has become progressively more painful and I have less use of my leg than i did before. So i was just wondering if anyone else might have had nerve damage from having MTS or the blood clot and if so what did you do about it? I am 28 years old and I can't accept that I am going to be in this much pain forever. Any thoughts/suggestions/stories would be greatly appreciated. thanks. <img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" />]]></description>
			<content:encoded><![CDATA[Has anyone had any kind of nerve damage as a result of having the blood clot or may-thurner? I had a blood clot in sept of '09 and then found out i had may-thurner. My iliac vein was flat, blah blah, to make a long story short here, I got a stent put in, in the beginning of august. I was told that it might work and it might not work in regards to relieving my pain which is all over my left leg and foot. They put the stent in, it didn't work pain wise. My vein is now open and the blood flow is normal and I am not at risk for clotting but I still have pain so after seeing a few specialists, I was informed that I have nerve damage. I am going in for testing in a week or so to see which nerves are affected but from what I understand there is no cure really for nerve damage if its been over 6 months. Things like acupuncture and yoga might help it but its always going to be this way if not get worse which I have noticed in the past 6 months, it has become progressively more painful and I have less use of my leg than i did before. So i was just wondering if anyone else might have had nerve damage from having MTS or the blood clot and if so what did you do about it? I am 28 years old and I can't accept that I am going to be in this much pain forever. Any thoughts/suggestions/stories would be greatly appreciated. thanks. <img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" />]]></content:encoded>
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			<title><![CDATA[Signature Policy]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=114</link>
			<pubDate>Thu, 12 Aug 2010 22:08:17 -0500</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=114</guid>
			<description><![CDATA[You must have at least 10 posts to have a custom signature. If you try and create a signature before then you will be denied and you will receive a reminder PM. <br />
<br />
We do not allow BBcode, HTML, or links of any kind in signatures. Abusers of this policy will be banned and blacklisted.]]></description>
			<content:encoded><![CDATA[You must have at least 10 posts to have a custom signature. If you try and create a signature before then you will be denied and you will receive a reminder PM. <br />
<br />
We do not allow BBcode, HTML, or links of any kind in signatures. Abusers of this policy will be banned and blacklisted.]]></content:encoded>
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			<title><![CDATA[Update on my MTS and Post Thrombitic syndrome]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=113</link>
			<pubDate>Mon, 28 Jun 2010 19:12:14 -0500</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=113</guid>
			<description><![CDATA[[/size&#93;[/font&#93;  I finally got to see a vascular surgeon and was told that I could not get the surgery to fix the MTS as my body would attack the stent and clot more and I would end up losing my leg. I have a very serious degree of post thrombitic syndrome in both legs and at the top left leg I have some old clotting that has not moved and is causing a trickle of blood leading into the MTS. I have allot of pain and find I can not stand long as the leg swells, my veins pop out and I get a discoloration that looks like brusing, it looks ugly. I have to lay down with my legs up above my heart for an hour or more. I take pain killers as this gets very painfull. Some days I cannot walk like today. I have spent all day with my legs up, I actuly think I could be clotting again, if the pain is worse I have to go to emerg. I have had 7 since september 2007 so this may be my eigth. My life has changed so much I was a very active young outdoors girl, quading, ski-dooing and own both, now I can barely stand for a couple of hours. I'm angery and sad and the only person in my town with this. I now take 4 needles a day in my stomach of Atrix to keep my blood thin. I have been on every blood thiner out there and have clotted. I have been told by doctors that Atrix is my last resort. I'm a young 40 year old and in good shape and now feel my life has gone from go go good to slow slow blah. Any suggestions?:idea I will be going into counceling so that will help. <img src="http://www.maythurnersyndrome.com/images/smilies/angel.gif" style="vertical-align: middle;" border="0" alt="Angel" title="Angel" /> PS I'm not sure how to use this site I see a Poll  and New Attachment what is that? If someone replies to me Please know that I do not check my emails every day maybe once a  week. Take care everyone its nice to know I'm not alone. I just wish that I knew someone with this who lived close to me.<img src="http://www.maythurnersyndrome.com/images/smilies/heart.gif" style="vertical-align: middle;" border="0" alt="Heart" title="Heart" />]]></description>
			<content:encoded><![CDATA[[/size][/font]  I finally got to see a vascular surgeon and was told that I could not get the surgery to fix the MTS as my body would attack the stent and clot more and I would end up losing my leg. I have a very serious degree of post thrombitic syndrome in both legs and at the top left leg I have some old clotting that has not moved and is causing a trickle of blood leading into the MTS. I have allot of pain and find I can not stand long as the leg swells, my veins pop out and I get a discoloration that looks like brusing, it looks ugly. I have to lay down with my legs up above my heart for an hour or more. I take pain killers as this gets very painfull. Some days I cannot walk like today. I have spent all day with my legs up, I actuly think I could be clotting again, if the pain is worse I have to go to emerg. I have had 7 since september 2007 so this may be my eigth. My life has changed so much I was a very active young outdoors girl, quading, ski-dooing and own both, now I can barely stand for a couple of hours. I'm angery and sad and the only person in my town with this. I now take 4 needles a day in my stomach of Atrix to keep my blood thin. I have been on every blood thiner out there and have clotted. I have been told by doctors that Atrix is my last resort. I'm a young 40 year old and in good shape and now feel my life has gone from go go good to slow slow blah. Any suggestions?:idea I will be going into counceling so that will help. <img src="http://www.maythurnersyndrome.com/images/smilies/angel.gif" style="vertical-align: middle;" border="0" alt="Angel" title="Angel" /> PS I'm not sure how to use this site I see a Poll  and New Attachment what is that? If someone replies to me Please know that I do not check my emails every day maybe once a  week. Take care everyone its nice to know I'm not alone. I just wish that I knew someone with this who lived close to me.<img src="http://www.maythurnersyndrome.com/images/smilies/heart.gif" style="vertical-align: middle;" border="0" alt="Heart" title="Heart" />]]></content:encoded>
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			<title><![CDATA[the stent. does it really relieve pain?]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=112</link>
			<pubDate>Sat, 08 May 2010 05:34:32 -0500</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=112</guid>
			<description><![CDATA[i am supposed to go get the stent put in at the end of june but they told me it only has a 30% chance of relieving any pain. i had the dvt in my left leg and  i dont have the swelling issues anymore but i have bad chronic pain in my left calf n my ankle n foot cramps up all the time. Sometimes its burning pain but its more just cramping pain. I also get bad groin pain like below my left buttocks if i sit for too long well i take that back, if i sit for more than 30 minutes. i guess im just curious for anyone that has got it done if it relieves pain right away? does it take a long time to recover from it? ive asked my doctor these questions and he said for some people it varies if it helps or it doesn't but if anyone can tell me how they felt after it or if it relieved pain at all would be really helpful. My pain is so bad that they upgraded my meds to norco which is double vicodin and it makes me feel insane. Ive tried over the counter meds but none of that helps either so it would be great to know if this procedure actually helped other people out. thank you <img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" />]]></description>
			<content:encoded><![CDATA[i am supposed to go get the stent put in at the end of june but they told me it only has a 30% chance of relieving any pain. i had the dvt in my left leg and  i dont have the swelling issues anymore but i have bad chronic pain in my left calf n my ankle n foot cramps up all the time. Sometimes its burning pain but its more just cramping pain. I also get bad groin pain like below my left buttocks if i sit for too long well i take that back, if i sit for more than 30 minutes. i guess im just curious for anyone that has got it done if it relieves pain right away? does it take a long time to recover from it? ive asked my doctor these questions and he said for some people it varies if it helps or it doesn't but if anyone can tell me how they felt after it or if it relieved pain at all would be really helpful. My pain is so bad that they upgraded my meds to norco which is double vicodin and it makes me feel insane. Ive tried over the counter meds but none of that helps either so it would be great to know if this procedure actually helped other people out. thank you <img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" />]]></content:encoded>
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			<title><![CDATA[Need some advise please]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=111</link>
			<pubDate>Thu, 06 May 2010 01:23:39 -0500</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=111</guid>
			<description><![CDATA[Hello im a 25 year old female I was diagnosed with a DVT in December 2009. I have not yet had an official diagnosis of may thurner just a strong possibility. I have continued swelling and pain with no relief ultrasound after ultrasound, they cant figure out why the clot is still there after 5 months. I was just wondering if anyone has gone through the same thing? I have been off work since December and still not looking like im returning anytime soon. any advise??]]></description>
			<content:encoded><![CDATA[Hello im a 25 year old female I was diagnosed with a DVT in December 2009. I have not yet had an official diagnosis of may thurner just a strong possibility. I have continued swelling and pain with no relief ultrasound after ultrasound, they cant figure out why the clot is still there after 5 months. I was just wondering if anyone has gone through the same thing? I have been off work since December and still not looking like im returning anytime soon. any advise??]]></content:encoded>
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			<title><![CDATA[1 year milestone]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=110</link>
			<pubDate>Tue, 06 Apr 2010 20:51:49 -0500</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=110</guid>
			<description><![CDATA[In our first year, this forum has gained 93 members.  I encourage everyone here to visit frequently and participate in discussions. For everyone in this forum, May Thurners Syndrome has had an impact on our life in some way or another. <img src="http://www.maythurnersyndrome.com/images/smilies/heart.gif" style="vertical-align: middle;" border="0" alt="Heart" title="Heart" />]]></description>
			<content:encoded><![CDATA[In our first year, this forum has gained 93 members.  I encourage everyone here to visit frequently and participate in discussions. For everyone in this forum, May Thurners Syndrome has had an impact on our life in some way or another. <img src="http://www.maythurnersyndrome.com/images/smilies/heart.gif" style="vertical-align: middle;" border="0" alt="Heart" title="Heart" />]]></content:encoded>
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			<title><![CDATA[my story]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=109</link>
			<pubDate>Mon, 29 Mar 2010 13:06:13 -0500</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=109</guid>
			<description><![CDATA[I am 27 and in August of 2009 I started taking birth control which i was only on for 3 weeks when my entire left leg turned purple and blue and swelled up. I had to go to the ER where they diagnosed me with a blood clot and put me on coumadin, compression stockings and shots (i forget the drug name). I was on bedrest for 2 months from september through november unable to walk, wear jeans, go to school, work or have any kind of a normal life and i had to go on disability. I had to give up my relationship with my boyfriend because it was a newish relationship and i felt like he shouldn't have to deal with my health problems. In February, they took me off coumadin and instead of feeling better, my problems got considerably worse. Everyday my calf n foot on the left leg would cramp up to the point i couldn't go anywhere because i couldn't handle the pain and also I started having groin pain in my left leg so bad that I couldn't stay seated for longer than 10 minutes. Driving my car was almost impossible and I had started school again in january and I could barely sit in class for the hour lecture. My doctor seemed to think i just needed physical therapy so I went to see her and she showed me my ER report and also the records of my catscan.  No one had ever showed me these records before, they claimed i had all the information that i needed to have but they were so wrong.<br />
<br />
My doctors had told me I had a blood clot but no one ever mentioned to me where exactly it was. I knew it affected my left leg but I wasn't sure of the actual location. I was informed that it was in my left iliac vein which is why my left leg was still having problems. My doctor kept prescribing me new pain pills after that in hopes that it would help.  I was taking vicodin which ive been on since september and now tramadol which is a non-narcotic opiate but it works as a narcotic and i feel absolutely crazy taking it. These two drugs together gave me some relief but not enough to make me stop questioning what was actually wrong with me.<br />
<br />
A couple weeks ago I emailed my doctor and requested a referral to go see a vascular specialist. At first she wouldn't give me the referral claiming she was taking care of the follow-up care and she didn't think anything was really wrong with me. However, I knew something was wrong and would not take no for an answer and got my referral and went to see the vascular specialist where he proceeded to show me my catscan slides and showed me where my clot was and how i have May-Thurner syndrome. At first i was mortified because first of all i didn't realize i had anything else other than the clot and secondly I couldn't believe that i would have gotten something like that after i had cleaned up my life. In June of 2009, I had quit smoking, started working out on a regular basis at the gym, started eating healthy and felt great about my positive lifestyle and then i got the blood clot and was so depressed that something like that could happen to me. <br />
<br />
However, I went home and read the articles about it and found this website and i realized that with this condition, its something that would have happened anyways even if i wasn't on birth control and even if i was already the healthiest person alive. Knowing that has made my quality of life a lot better. I am going to get the stent put in, in mid june after school lets out and i am hoping that it helps get rid of some of my pain. I hate the fact i am going to have to go back on coumadin but if it helps relieve any of this chronic pain i have on a daily basis than i am all for it. And after reading people's stories on here, I felt much more connected to what this syndrome really means so i figured i would share my story. I actually feel better having told a community of people that understand what i am going through and wont just tell me to get over it. so thank you <img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" />]]></description>
			<content:encoded><![CDATA[I am 27 and in August of 2009 I started taking birth control which i was only on for 3 weeks when my entire left leg turned purple and blue and swelled up. I had to go to the ER where they diagnosed me with a blood clot and put me on coumadin, compression stockings and shots (i forget the drug name). I was on bedrest for 2 months from september through november unable to walk, wear jeans, go to school, work or have any kind of a normal life and i had to go on disability. I had to give up my relationship with my boyfriend because it was a newish relationship and i felt like he shouldn't have to deal with my health problems. In February, they took me off coumadin and instead of feeling better, my problems got considerably worse. Everyday my calf n foot on the left leg would cramp up to the point i couldn't go anywhere because i couldn't handle the pain and also I started having groin pain in my left leg so bad that I couldn't stay seated for longer than 10 minutes. Driving my car was almost impossible and I had started school again in january and I could barely sit in class for the hour lecture. My doctor seemed to think i just needed physical therapy so I went to see her and she showed me my ER report and also the records of my catscan.  No one had ever showed me these records before, they claimed i had all the information that i needed to have but they were so wrong.<br />
<br />
My doctors had told me I had a blood clot but no one ever mentioned to me where exactly it was. I knew it affected my left leg but I wasn't sure of the actual location. I was informed that it was in my left iliac vein which is why my left leg was still having problems. My doctor kept prescribing me new pain pills after that in hopes that it would help.  I was taking vicodin which ive been on since september and now tramadol which is a non-narcotic opiate but it works as a narcotic and i feel absolutely crazy taking it. These two drugs together gave me some relief but not enough to make me stop questioning what was actually wrong with me.<br />
<br />
A couple weeks ago I emailed my doctor and requested a referral to go see a vascular specialist. At first she wouldn't give me the referral claiming she was taking care of the follow-up care and she didn't think anything was really wrong with me. However, I knew something was wrong and would not take no for an answer and got my referral and went to see the vascular specialist where he proceeded to show me my catscan slides and showed me where my clot was and how i have May-Thurner syndrome. At first i was mortified because first of all i didn't realize i had anything else other than the clot and secondly I couldn't believe that i would have gotten something like that after i had cleaned up my life. In June of 2009, I had quit smoking, started working out on a regular basis at the gym, started eating healthy and felt great about my positive lifestyle and then i got the blood clot and was so depressed that something like that could happen to me. <br />
<br />
However, I went home and read the articles about it and found this website and i realized that with this condition, its something that would have happened anyways even if i wasn't on birth control and even if i was already the healthiest person alive. Knowing that has made my quality of life a lot better. I am going to get the stent put in, in mid june after school lets out and i am hoping that it helps get rid of some of my pain. I hate the fact i am going to have to go back on coumadin but if it helps relieve any of this chronic pain i have on a daily basis than i am all for it. And after reading people's stories on here, I felt much more connected to what this syndrome really means so i figured i would share my story. I actually feel better having told a community of people that understand what i am going through and wont just tell me to get over it. so thank you <img src="http://www.maythurnersyndrome.com/images/smilies/smile.gif" style="vertical-align: middle;" border="0" alt="Smile" title="Smile" />]]></content:encoded>
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			<title><![CDATA[My story]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=108</link>
			<pubDate>Thu, 25 Mar 2010 19:57:26 -0500</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=108</guid>
			<description><![CDATA[In 2006, I was having major swelling in my left thigh and then calf, and was told by the PA at my PCP to go to the ER because of a possible DVT. So I went into the ER in McKinney, TX.  I am healthy, a non-smoker, thin, and had not gone on any long trips, though I was on BC. At first they did not believe I had a DVT because there were not really any risk factors.  They did an ultrasound and told me that I had a DVT in my femoral vein near my groin. I was shown how to give myself Lovenox shots and sent home told to be on bedrest and follow up with my PCP in two days.  Yes, sent home and I trusted that this was correct. (1st mistake).  And I have good health insurance by the way. <br />
<br />
I went to my PCP, who put me on Coumadin and took me off the Lovenox when my INR reached 2.0. She seemed a bit inexperienced with DVTs, but I was not having any luck finding another doctor that could treat me so I just stuck with her. (2nd mistake) I was on Coumadin for 6 months. My OBGYN suggested I wear stockings and get my blood tested for clotting factors so I did go to a Hemotologist and all tests came back negative. He had no additional suggestions. A follow up US showed chronic partial blockage. Everything I was hearing was that post-thrombotic syndrome was to be expected and I could not do anything about it. (third mistake)<br />
<br />
Now we come to about 3 weeks ago (4 years after first DVT). I started to notice more pressure in my left leg after sitting or standing just a few minutes and shooting pains in my groin. I went into a different hospital this time. They did an ultrasound and felt a new clot had developed in my femoral vein, though the clueless ER doctor could not tell me where. I was hospitalized for 5 days while being given Lovenox and Coumadin until my INR hit 2.0. While there I tried to contact the Radiology dept there to ask what kind of procedures their Interventional Radiologist could perform, but got a ditzy girl who was no help. <br />
<br />
I contacted the Interventional Radiologist dept at UTSW in Dallas and they told me to make an appt as soon as I was released to discuss possible options.  Spent 5 days in the hospital, and 2 days after being released, I met with the IR at UTSW. We scheduled a Venogram to check for May-Thurner and possible Thrombolysis for Monday (2 weeks after released from hospital).<br />
<br />
During the venogram (through my popliteal vein behind my knee), it was found that my left common iliac vein, from just above my groin to interior vena cava was completely collapsed with no visible blood flow. There was no visible clot, except for the small chronic clot against the side of my vein in my groin. The clot that I was thought to have 2 weeks before was not present. Above that area, I had large collateral veins that went from my left common iliac to my right common iliac in my groin. The doctor did angioplasty, ballooning open my veins in a couple places, but the flow was still not sufficient. 3 stints were placed from the start of my interior vena cava down. They wanted to avoid placing a stent at my groin, where my leg bends at my hip, but after the first 3 stints and additional angioplasty below, the vein was still not opening enough. A fourth stint was placed for a total of about 8 inches of stint – 4 x 60mm with slight overlap. There are 3 SMART Control Stints in 10 and 12 mm widths and one Protégé stint where my leg bends at my hip (not sure of size).  All are nitinol, which is a nickel and titanium compound. <br />
<br />
My doctor did not diagnose May-Thurner.  There was no site compression present since the vein was collapsed along the whole length, so definitive diagnosis could be given. He said the first clot could have caused the vein to collapse if it was present for a long period of time.  I suspect with a C-Scan or MRI, they may be able to tell if the left common iliac vein is squeezed under the right common iliac artery, but I doubt I will pursue it because the treatment would not change.  <br />
<br />
The procedure was much more painful than I thought it would be. Two doses of Ativan and 4 doses of Fentynol during the procedure and I was still in tears.  No overnight stay. My abdomen ached for two days and my lower back pain was terrible. I couldn’t breathe deep, sit or move much. I had to convince them to give me pain meds which helped helping though. Three days later and the pain is letting up though I am still pretty tender and still can't bend over.]]></description>
			<content:encoded><![CDATA[In 2006, I was having major swelling in my left thigh and then calf, and was told by the PA at my PCP to go to the ER because of a possible DVT. So I went into the ER in McKinney, TX.  I am healthy, a non-smoker, thin, and had not gone on any long trips, though I was on BC. At first they did not believe I had a DVT because there were not really any risk factors.  They did an ultrasound and told me that I had a DVT in my femoral vein near my groin. I was shown how to give myself Lovenox shots and sent home told to be on bedrest and follow up with my PCP in two days.  Yes, sent home and I trusted that this was correct. (1st mistake).  And I have good health insurance by the way. <br />
<br />
I went to my PCP, who put me on Coumadin and took me off the Lovenox when my INR reached 2.0. She seemed a bit inexperienced with DVTs, but I was not having any luck finding another doctor that could treat me so I just stuck with her. (2nd mistake) I was on Coumadin for 6 months. My OBGYN suggested I wear stockings and get my blood tested for clotting factors so I did go to a Hemotologist and all tests came back negative. He had no additional suggestions. A follow up US showed chronic partial blockage. Everything I was hearing was that post-thrombotic syndrome was to be expected and I could not do anything about it. (third mistake)<br />
<br />
Now we come to about 3 weeks ago (4 years after first DVT). I started to notice more pressure in my left leg after sitting or standing just a few minutes and shooting pains in my groin. I went into a different hospital this time. They did an ultrasound and felt a new clot had developed in my femoral vein, though the clueless ER doctor could not tell me where. I was hospitalized for 5 days while being given Lovenox and Coumadin until my INR hit 2.0. While there I tried to contact the Radiology dept there to ask what kind of procedures their Interventional Radiologist could perform, but got a ditzy girl who was no help. <br />
<br />
I contacted the Interventional Radiologist dept at UTSW in Dallas and they told me to make an appt as soon as I was released to discuss possible options.  Spent 5 days in the hospital, and 2 days after being released, I met with the IR at UTSW. We scheduled a Venogram to check for May-Thurner and possible Thrombolysis for Monday (2 weeks after released from hospital).<br />
<br />
During the venogram (through my popliteal vein behind my knee), it was found that my left common iliac vein, from just above my groin to interior vena cava was completely collapsed with no visible blood flow. There was no visible clot, except for the small chronic clot against the side of my vein in my groin. The clot that I was thought to have 2 weeks before was not present. Above that area, I had large collateral veins that went from my left common iliac to my right common iliac in my groin. The doctor did angioplasty, ballooning open my veins in a couple places, but the flow was still not sufficient. 3 stints were placed from the start of my interior vena cava down. They wanted to avoid placing a stent at my groin, where my leg bends at my hip, but after the first 3 stints and additional angioplasty below, the vein was still not opening enough. A fourth stint was placed for a total of about 8 inches of stint – 4 x 60mm with slight overlap. There are 3 SMART Control Stints in 10 and 12 mm widths and one Protégé stint where my leg bends at my hip (not sure of size).  All are nitinol, which is a nickel and titanium compound. <br />
<br />
My doctor did not diagnose May-Thurner.  There was no site compression present since the vein was collapsed along the whole length, so definitive diagnosis could be given. He said the first clot could have caused the vein to collapse if it was present for a long period of time.  I suspect with a C-Scan or MRI, they may be able to tell if the left common iliac vein is squeezed under the right common iliac artery, but I doubt I will pursue it because the treatment would not change.  <br />
<br />
The procedure was much more painful than I thought it would be. Two doses of Ativan and 4 doses of Fentynol during the procedure and I was still in tears.  No overnight stay. My abdomen ached for two days and my lower back pain was terrible. I couldn’t breathe deep, sit or move much. I had to convince them to give me pain meds which helped helping though. Three days later and the pain is letting up though I am still pretty tender and still can't bend over.]]></content:encoded>
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			<title><![CDATA[Maybe May-Thurner]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=107</link>
			<pubDate>Thu, 25 Mar 2010 19:52:35 -0500</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=107</guid>
			<description><![CDATA[Hi! After 2 DVTs in four years, a recent venogram showed that my left iliac vein was completely collapsed, with no blood flow, from groin to interior vena cava. Doctor said it may be May-Thurner or may not, no way to tell since there was no specific location compression. I had an 8" stent placed 4 days ago. <br />
<br />
Treatment is similar to others with May-Thurner, so even though I have not been diagnosed as so, I decided to join the forum. I hope to learn a little bit from others experiences and hope to be able to help others here.]]></description>
			<content:encoded><![CDATA[Hi! After 2 DVTs in four years, a recent venogram showed that my left iliac vein was completely collapsed, with no blood flow, from groin to interior vena cava. Doctor said it may be May-Thurner or may not, no way to tell since there was no specific location compression. I had an 8" stent placed 4 days ago. <br />
<br />
Treatment is similar to others with May-Thurner, so even though I have not been diagnosed as so, I decided to join the forum. I hope to learn a little bit from others experiences and hope to be able to help others here.]]></content:encoded>
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			<title><![CDATA[Lovenox Injections thread]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=105</link>
			<pubDate>Wed, 03 Mar 2010 22:44:00 -0600</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=105</guid>
			<description><![CDATA[This thread is intended to share tips and experiences with Lovenox.<br />
<br />
I have been taking Lovenox twice a day, 80mg each for now one month, with 3-5 months to go to treat my MTS-induced DVT. I used to take Coumadin, but my DVT got worse, so I was put back on just Lovenox.<br />
Some things observations with Lovenox:<br />
<br />
<span style="font-weight: bold;">COST</span>: With Aetna health insurance, I pay &#36;60 for a up to a one-month supply. The pharmacist said that the one–month supply costs &#36;2,000. Thank God for a good federal employee health plan.<br />
<br />
<span style="font-weight: bold;">BRUISING</span>:I was given a Lovenox kit when I was discharged from the hospital – it has a booklet, video and sharps box to throw away used syringes. The booklet has a picture of the midsection a rather slim woman over-layed with numbered sections as to where to inject. Problem is that most of them are above the level of the bellybutton where there is hardly any fat. I have been alternating sides and injecting mostly near the midsection about 2-4 inches on the sides of the belly-button. If I go further out I have very little fat to pinch an inch as the video jokes. I had been getting bruises at the injection sites, some the size of dimes. I searched online and found that some patients were told by doctors or nurses to ice the area they are going to inject. I tried that and now I get no more bruises. <br />
I put an ice cube or two in a sandwich bag. Press it on the area to inject through a T-shirt and once it cools down without the t-shirt- all for about 4-5 minutes. Then I use the alcohol wipe to disinfect the skin. Then I inject [ the fun part&#93; and ice afterwards for 2-3 minutes without pressing too hard so as not to disturb the bubble of Lovenox. It has worked like a charm. The bruises I had take at least two weeks to go away. The theory behind the icing is two-fold- because it shirks the blood vessels, you are less likely to puncture one when injecting. And if you do hit one, the icing helps reduce the internal bleeding, which after all is what a bruise is.<br />
I also found that if I inject more towards the love handles it is more painful when breaking the skin and after the injecting is done. I guess that when I walk the torso twists a little and the injection site gets a little pressure. On the other hand, injecting further out gave me no bruises before I discovered the icing trick.<br />
<br />
<span style="font-weight: bold;">PAIN</span>: I find that the whole process is less painful than I had expected, been needle-phobic. The part that hurts is pushing the liquid through. I am trying o push it more slowly and that seems to help. Maybe that gives the skin more time to stretch.<br />
<br />
<span style="font-weight: bold;">AIR BUBBLE</span>: Because the 80mg dosage I take is on the high side, some people take 40 or 60 depending on your weight in kilograms, 1mg for each kilogram is how they dose it, I like to blow out the air bubble before injecting. My PCP said it was ok to expel it, but the hospital nurse says it is ok to inject it and that it helps to “seal” the puncture. I have done it both ways, but prefer to inject less volume. <br />
<br />
<span style="font-weight: bold;">TRAVEL</span>: Finally, when I travel, I bring the Lovenox on my carry-on. I called the manufacturer and like in the box, she warned me not to keep it under 58 degrees F for an extended period of time, and according to AA the plane’s luggage cargo area has  has some heating but well below the 58F. I contacted TSA and they said they treat Lovenox like insulin – it is ok to bring onboard, but you are supposed just enough for you itinerary. <br />
Nevertheless, I brought four boxes, told a TSA employee that I had injectable prescriptions, I put them on a tray and ran them through the X-ray. I had been told by the manufacturer that it is ok to run them through the X-ray three time – she said the scientist have not tested more times. I did not have to show proof of prescription or anything. This was at DCA. Maybe other airports give more hassle. <br />
Anyone have other experiences with Lovenox or tips to share?]]></description>
			<content:encoded><![CDATA[This thread is intended to share tips and experiences with Lovenox.<br />
<br />
I have been taking Lovenox twice a day, 80mg each for now one month, with 3-5 months to go to treat my MTS-induced DVT. I used to take Coumadin, but my DVT got worse, so I was put back on just Lovenox.<br />
Some things observations with Lovenox:<br />
<br />
<span style="font-weight: bold;">COST</span>: With Aetna health insurance, I pay &#36;60 for a up to a one-month supply. The pharmacist said that the one–month supply costs &#36;2,000. Thank God for a good federal employee health plan.<br />
<br />
<span style="font-weight: bold;">BRUISING</span>:I was given a Lovenox kit when I was discharged from the hospital – it has a booklet, video and sharps box to throw away used syringes. The booklet has a picture of the midsection a rather slim woman over-layed with numbered sections as to where to inject. Problem is that most of them are above the level of the bellybutton where there is hardly any fat. I have been alternating sides and injecting mostly near the midsection about 2-4 inches on the sides of the belly-button. If I go further out I have very little fat to pinch an inch as the video jokes. I had been getting bruises at the injection sites, some the size of dimes. I searched online and found that some patients were told by doctors or nurses to ice the area they are going to inject. I tried that and now I get no more bruises. <br />
I put an ice cube or two in a sandwich bag. Press it on the area to inject through a T-shirt and once it cools down without the t-shirt- all for about 4-5 minutes. Then I use the alcohol wipe to disinfect the skin. Then I inject [ the fun part] and ice afterwards for 2-3 minutes without pressing too hard so as not to disturb the bubble of Lovenox. It has worked like a charm. The bruises I had take at least two weeks to go away. The theory behind the icing is two-fold- because it shirks the blood vessels, you are less likely to puncture one when injecting. And if you do hit one, the icing helps reduce the internal bleeding, which after all is what a bruise is.<br />
I also found that if I inject more towards the love handles it is more painful when breaking the skin and after the injecting is done. I guess that when I walk the torso twists a little and the injection site gets a little pressure. On the other hand, injecting further out gave me no bruises before I discovered the icing trick.<br />
<br />
<span style="font-weight: bold;">PAIN</span>: I find that the whole process is less painful than I had expected, been needle-phobic. The part that hurts is pushing the liquid through. I am trying o push it more slowly and that seems to help. Maybe that gives the skin more time to stretch.<br />
<br />
<span style="font-weight: bold;">AIR BUBBLE</span>: Because the 80mg dosage I take is on the high side, some people take 40 or 60 depending on your weight in kilograms, 1mg for each kilogram is how they dose it, I like to blow out the air bubble before injecting. My PCP said it was ok to expel it, but the hospital nurse says it is ok to inject it and that it helps to “seal” the puncture. I have done it both ways, but prefer to inject less volume. <br />
<br />
<span style="font-weight: bold;">TRAVEL</span>: Finally, when I travel, I bring the Lovenox on my carry-on. I called the manufacturer and like in the box, she warned me not to keep it under 58 degrees F for an extended period of time, and according to AA the plane’s luggage cargo area has  has some heating but well below the 58F. I contacted TSA and they said they treat Lovenox like insulin – it is ok to bring onboard, but you are supposed just enough for you itinerary. <br />
Nevertheless, I brought four boxes, told a TSA employee that I had injectable prescriptions, I put them on a tray and ran them through the X-ray. I had been told by the manufacturer that it is ok to run them through the X-ray three time – she said the scientist have not tested more times. I did not have to show proof of prescription or anything. This was at DCA. Maybe other airports give more hassle. <br />
Anyone have other experiences with Lovenox or tips to share?]]></content:encoded>
		</item>
		<item>
			<title><![CDATA[Intro from Mr. P]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=104</link>
			<pubDate>Mon, 22 Feb 2010 21:40:04 -0600</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=104</guid>
			<description><![CDATA[Hi my name is Iggy. I am a 36-year old guy diagnosed with MTS on February 1, 2010. I live in DC. I hope the site will allow men to contribute their experiences as well.]]></description>
			<content:encoded><![CDATA[Hi my name is Iggy. I am a 36-year old guy diagnosed with MTS on February 1, 2010. I live in DC. I hope the site will allow men to contribute their experiences as well.]]></content:encoded>
		</item>
		<item>
			<title><![CDATA[Jenna's Intro]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=103</link>
			<pubDate>Wed, 17 Feb 2010 12:11:17 -0600</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=103</guid>
			<description><![CDATA[Hello Everyone,<br />
My name is Jenna- Im from North Dakota and am 24 years old. I was diagnosed with MTS 3 months before delivering a healthy little boy in November of 2008. I hope this site helps me find the answers I've been looking for and look forward to learning from your experiences.]]></description>
			<content:encoded><![CDATA[Hello Everyone,<br />
My name is Jenna- Im from North Dakota and am 24 years old. I was diagnosed with MTS 3 months before delivering a healthy little boy in November of 2008. I hope this site helps me find the answers I've been looking for and look forward to learning from your experiences.]]></content:encoded>
		</item>
		<item>
			<title><![CDATA[Newbie]]></title>
			<link>http://www.maythurnersyndrome.com/showthread.php?tid=100</link>
			<pubDate>Tue, 26 Jan 2010 08:32:33 -0600</pubDate>
			<guid isPermaLink="false">http://www.maythurnersyndrome.com/showthread.php?tid=100</guid>
			<description><![CDATA[Hello everyone, My name is Kate and Im new to this..  I have been suffering from severe Dvts since I was 17..  I am now 26..  I have yet to be diagnosed with MTS...  The doctors tell me they think that is what I have but that only exploratory surgery would tell me for sure..  I have lots of symptoms that others appear to be suffering from as well and I cant wait to read further and talk with all of you about this.. I suffer from leg pain swelling and burning still..  I am on Coumadin and wearing these lovely pantyhose for life..  I have experienced hair loss since I have had Thrombolysis..  I also seem to be forever fatigued which is hard when raising 2 little boys..  I am not to sure what my future holds but hopefully some answers will come soon..  <img src="http://www.maythurnersyndrome.com/images/smilies/biggrin.gif" style="vertical-align: middle;" border="0" alt="Big Grin" title="Big Grin" />[/color&#93;[/font&#93;]]></description>
			<content:encoded><![CDATA[Hello everyone, My name is Kate and Im new to this..  I have been suffering from severe Dvts since I was 17..  I am now 26..  I have yet to be diagnosed with MTS...  The doctors tell me they think that is what I have but that only exploratory surgery would tell me for sure..  I have lots of symptoms that others appear to be suffering from as well and I cant wait to read further and talk with all of you about this.. I suffer from leg pain swelling and burning still..  I am on Coumadin and wearing these lovely pantyhose for life..  I have experienced hair loss since I have had Thrombolysis..  I also seem to be forever fatigued which is hard when raising 2 little boys..  I am not to sure what my future holds but hopefully some answers will come soon..  <img src="http://www.maythurnersyndrome.com/images/smilies/biggrin.gif" style="vertical-align: middle;" border="0" alt="Big Grin" title="Big Grin" />[/color][/font]]]></content:encoded>
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