Update on my MTS and Post Thrombitic syndrome

[Shannon Saunders]

[/size][/font] I finally got to see a vascular surgeon and was told that I could not get the surgery to fix the MTS as my body would attack the stent and clot more and I would end up losing my leg. I have a very serious degree of post thrombitic syndrome in both legs and at the top left leg I have some old clotting that has not moved and is causing a trickle of blood leading into the MTS. I have allot of pain and find I can not stand long as the leg swells, my veins pop out and I get a discoloration that looks like brusing, it looks ugly. I have to lay down with my legs up above my heart for an hour or more. I take pain killers as this gets very painfull. Some days I cannot walk like today. I have spent all day with my legs up, I actuly think I could be clotting again, if the pain is worse I have to go to emerg. I have had 7 since september 2007 so this may be my eigth. My life has changed so much I was a very active young outdoors girl, quading, ski-dooing and own both, now I can barely stand for a couple of hours. I'm angery and sad and the only person in my town with this. I now take 4 needles a day in my stomach of Atrix to keep my blood thin. I have been on every blood thiner out there and have clotted. I have been told by doctors that Atrix is my last resort. I'm a young 40 year old and in good shape and now feel my life has gone from go go good to slow slow blah. Any suggestions?:idea I will be going into counceling so that will help. PS I'm not sure how to use this site I see a Poll and New Attachment what is that? If someone replies to me Please know that I do not check my emails every day maybe once a week. Take care everyone its nice to know I'm not alone. I just wish that I knew someone with this who lived close to me.