05-09-2011, 12:23 PM
Hello there, hopefully my story can help others out
I am a 31 year old mother of three children, ages, 12, 9 and 4. Since the birth of my 12 year old daughter I have constant pain in my right leg...yepper I said that correctly...right...which still stumps the doctors. Even after sleeping I feel like I have been up running all night. They said it was in my head, blah, blah, blah. Well then my 9 year old son came along, about 6 months into my pregnancy I had to wear a cradle to help relieve the pressure on my legs and lower half, and again they blamed this all on pregnancy. After the birth of my 4 year old son, I said enough was enough, I had a rough pregnancy with lots of pain in my lower half, small veins popping up in my buttocks all they way down my thigh, and the discoloration in my leg and feet was frequent. After his birth the pain continued and the doctor said I had poor circulation in my legs? And left it at that, well in June of 2008, the pain in my right leg was unbearable. They finally referred me to a vascular surgeon who did all the ultrasounds, MRI's and tests and diagnosed me with MTS...and pelvic congestion syndrome. I was very close to throwing a major clot, as my Left Common Illiac Vein was nearly closed. I was moving to Texas in less than a month, so it was decided to have a specialist look at me as soon as I got there.
Seen a new doctor in September of 2008, who confirmed all the same things, after repeat tests, and I was scheduled for a venogram in November 2008 with the Interventional Radiologist. Three hours later, I had 2 stents piggy backed to keep the vein open, and 6 coils for the pelvic congestion syndrome. This procedure was very painful and recovery took over a week, as it was bilateral, but the pain had somewhat diminished for about 6 months. They went back in September 2008 with a right venogram but everything looks good. Here we are again...I just moved to NC and am back to seeing doctors to figure out what is going on. The pain is still there, and they can't seem to decide if it is MTS or the PCS going on?
I am open for any advice on treatment or things that work for them. I am a non smoking, and non drinking person who is thin, so I don't meet the "normal" stereotypes for these conditions. Feels good reading this to know I am not alone, as most people think I am crazy and even Doctors have no idea??
Again any advice or input please I am open to it....and my advice to anyone....always follow your gut instinct, if you know something is not right with you....push and push till you get the right help!!
Gina
I am a 31 year old mother of three children, ages, 12, 9 and 4. Since the birth of my 12 year old daughter I have constant pain in my right leg...yepper I said that correctly...right...which still stumps the doctors. Even after sleeping I feel like I have been up running all night. They said it was in my head, blah, blah, blah. Well then my 9 year old son came along, about 6 months into my pregnancy I had to wear a cradle to help relieve the pressure on my legs and lower half, and again they blamed this all on pregnancy. After the birth of my 4 year old son, I said enough was enough, I had a rough pregnancy with lots of pain in my lower half, small veins popping up in my buttocks all they way down my thigh, and the discoloration in my leg and feet was frequent. After his birth the pain continued and the doctor said I had poor circulation in my legs? And left it at that, well in June of 2008, the pain in my right leg was unbearable. They finally referred me to a vascular surgeon who did all the ultrasounds, MRI's and tests and diagnosed me with MTS...and pelvic congestion syndrome. I was very close to throwing a major clot, as my Left Common Illiac Vein was nearly closed. I was moving to Texas in less than a month, so it was decided to have a specialist look at me as soon as I got there.
Seen a new doctor in September of 2008, who confirmed all the same things, after repeat tests, and I was scheduled for a venogram in November 2008 with the Interventional Radiologist. Three hours later, I had 2 stents piggy backed to keep the vein open, and 6 coils for the pelvic congestion syndrome. This procedure was very painful and recovery took over a week, as it was bilateral, but the pain had somewhat diminished for about 6 months. They went back in September 2008 with a right venogram but everything looks good. Here we are again...I just moved to NC and am back to seeing doctors to figure out what is going on. The pain is still there, and they can't seem to decide if it is MTS or the PCS going on?
I am open for any advice on treatment or things that work for them. I am a non smoking, and non drinking person who is thin, so I don't meet the "normal" stereotypes for these conditions. Feels good reading this to know I am not alone, as most people think I am crazy and even Doctors have no idea??
Again any advice or input please I am open to it....and my advice to anyone....always follow your gut instinct, if you know something is not right with you....push and push till you get the right help!!
Gina